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Showing posts with label WAD. Show all posts
Showing posts with label WAD. Show all posts

Saturday, May 21, 2016

Dementia in India – What does it look like in other countries? Sailesh Mishra at Alzheimer’s Speaks Radio


Dear Friends, It  was honor to have been featured at Global Renowned and Esteem Alzheimer's Speaks Radio of Lori La Bey ' ‪#‎Dementia‬ In ‪#‎India‬ – Does It Look Like Other Countries? ' on 10th May 2016. 

https://www.spreaker.com/user/sbarnard4/dementia-in-india-what-does-it-look-like_1


Today we are lucky to have Sailesh-Mishra from India with us. Sailesh is Social Entrepreneur and Founder of Silver innings® a community dedicated to Senior Citizens in India and A1 Snehanjali, Assisted Living Elder Care Home. Listen and learn what dementia care looks like in India.


Contact Information For Sailesh-Mishra:
Email: silverinnings@gmail.com / a1snehanjali@gmail.com 
Call: 91+ 9987104233 / 91+ 9323919145 
Website: www.silverinnings.com ; www.a1snehanjali.com 

Additional Resource Information:
Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/
Keynote Speaker: https://www.alzheimersspeaks.com/event-planners
Join The Purple Angel Project: https://www.alzheimersspeaks.com/purple-angel-project
Check out Audible www.audibletrial.com/SOCIAL
Check out Fresh Books www.gofreshbooks.com/alive

Wednesday, September 2, 2015

Video: Heart Remembers But Mind Forgets #WAM2O15




Video Release by Silver Inning Foundation for World Alzheimer's Month September 2015, ‪#‎WAM2015‬ : 'Heart Remembers But Mind Forgets'  

This Video is part of 1st in series, made by Students of TISS ( Center for Health and Mental Health School of Social Work, Tata Institute of Social Sciences, Mumbai, India) for Silver Inning Foundation (NGO Working with ‪#‎SeniorCitizens‬) as part of project for World Alzheimer's Month September 2015, #WAM2015 ‪#‎RememberMe‬ ‪#‎SilverInnings‬

Its small effort through audio visual aids by young students to create awareness about a non curable, progressive brain disease #Alzheimer's / ‪#‎Dementia, which mostly affects elders of 60 years and above. We request you to not only watch this video but also forward and show this to all members of your family and community.

#ARDSI #Mumbai #India #A1Snehanjali #TISS #SeniorCitizens

World Alzheimer's Awareness Month September 2015 Events – Greater Mumbai Programme

Remember Those Who Cant Remember


World Alzheimer's Awareness Month 2015 – Greater Mumbai Programme


Theme for World Alzheimer's Month™ 2015:  Remember Me



On the occasion of World Alzheimer’s Day on 21st Sep 2015 Silver Inning Foundation and ARDSI Greater Mumbai chapter in association with Sophia College, Pushpa Ma Foundation, Eisai Pharma, The Metrognome, TISS, Nirmala Niketan College of Social work, Silver Innings Helpline, Nair Hospital Occupational Therapist(OT)Dept , Bhaktivedanta Palliative Care and ‘A1 Snehanjali’ assisted living elder care home, Invites you for #WAM 2015 International World Alzheimer's Month Programme, to create awareness about Dementia and Alzheimer’s in city of Mumbai and nearby area. 


September 2015 is the fourth global World Alzheimer’s Month™, an international campaign to raise awareness and challenge stigma.


The theme for World Alzheimer's Month 2015 is Remember Me. We're encouraging people all around the world to learn to spot the signs of dementia, but also not to forget about loved ones who are living with dementia, or those who may have passed away.


The impact of September’s campaign is growing, but the stigmatisation and misinformation that surrounds dementia remains a global problem.


This event is FREE and Open for Family members, Students, Counselors, Medical and Social Work Professionals, Person suffering with Dementia / Alzheimer’s, Senior Citizens & Interested individuals, with Prior Registration ONLY.



Tentative schedule: 

Every Week a Awareness Video made by TISS Students will be released on Youtube


Wed 9th Sep : Talk with Students by Ms. Mona at St. Joseph College, Nalasopara west - 9.30am to 10.30am


Fri 11th Sep : Talk by Sailesh Mishra at GERON National conference at Varodara


Mon 14th Sep : Talk for Students by Sailesh Mishra, Sophia College, Warden Road, Mumbai


Mon 14th , Tue 15th and Wed 16th Sep : Memory Camp by Eisai Phrama at Dada Dadi Park, Veer Sawarkar Udyan, L .T. Road, Pushpa Ma Foundation, Borivali west - 5pm to 7pm and 
Talk by Shilpa Chandawarkar (Caregiver)


Today 21st Sep World Alzheimer's Day, Silver Innings FC ‪#‎Youth‬ ‪#‎Football‬ Team Dedicates its Win and Pledges its Support to People Suffering with ‪#‎Alzheimer‬'s ‪#‎Dementia‬ and their Family members. 


Tues 22nd - Walkathon - Memory Walk at Dada Dadi Park, Veer Sawarkar Udyan, L .T. Road, Pushpa Ma Foundation, Borivali west - 5pm to 7pm AND Talk by Shilpa Chandawarkar (Caregiver)


Tues 22nd : Talk with Senior Citizens Resident and Caregivers of A1 Snehanjali , by Dr. Suresh Patil (Psychiatrist) Nalasopara west


24th Sep Thanks to ‪#‎Bollywood‬ Superstar ‪#‎VivekOberoi‬ for supporting World Alzheimer's Month September 2015 Program!


Fri 25th Sep YWCA Elder Women Awareness Event With Fun and Games: 2pm to 4pm at Chacha Nehru Park, Model Town, Near RTO Bus Stop, Andheri West in association with YWCA and Nair Hospital Occupational Therapist(OT)Dept



Sat 26th Sep 2015 Awareness session for Students of Royal College of Science, Arts and Commerce, Mira Road By Dr. Vineeta Sharma and Team of Bhaktivedanta Palliative Care 


Mon 28th Sep “Alzheimer's Awareness For Students” at 10am to 11.30am at St. Joseph Junior College, Nandakal, ‪#‎Nalasopara‬ west By ‪#‎TISS‬ MSW Students


Wed 30th Sep “Alzheimer's Awareness For ‪#‎Seniorcitizens‬ ” at 4.30pm to 5.30pm at Nanbhat Church Senior Citizens Group, Nanbhat Church, ‪#‎Nalasopara‬ west By Mona Mishra and Jenet Faras




For more information you can call –
 9987104233 / 9029000091 / 9323919145 ( Mon to Fri - 11am to 5pm) or



#RememberMe #India #Mumbai #ARDSI #SilverInnings #Dementia #Alzheimer's #A1Snehanjali 



Please Note the event, date and time are subject to change.

Tuesday, October 7, 2014

World Alzheimer’s Day: Patients, their families struggle due to lack of facilities

By Riddhi Doshi, Hindustan Times  New Delhi, September 21, 2014 

Every day, Maya Sahadevan has to beg and plead to get her mother into the bathroom for her morning bath. "When she does go in, she just sits there, staring at the ceiling, and often walks out without having had a bath," says Maya, 40, a private tutor in Mumbai.

It may not seem like much, but for Maya, the daily battle over the bath is a sign of further deterioration as her 69-year-old mother slips deeper into her dementia, her personality changing, her memories fading, and simple everyday tasks becoming insurmountable hurdles. 






Maya’s mother was diagnosed with dementia four years ago. "Our first clue that something was wrong was in 2012, when she started saying the same thing again and again," she says. Maya took her to a psychiatrist, where she was diagnosed with dementia. She now spends most of the day sleeping, or staring.

"We stay home with her all the time," says Maya. "It’s hard to juggle housework, my afternoon tutorial classes, and also try and care for her." Lately, the Sahadevans have been looking for help, but it’s been a frustrating search.

Dementia — an umbrella term for a wide range of degenerative mental conditions, the most commonly known being Alzheimer’s — causes long-term loss of the ability to think and reason. Patients need constant supervision, and specialised care. Even in megalopolises like Mumbai and Delhi, such care is almost impossible to find.

"Ideally, a person with dementia should have access to trained caregivers who understand the disease and its patients’ behaviour. This is hard to find in India," says Mona Mishra, a counsellor at dementia care home A1 Snehanjali

In Mumbai, for instance, there is just one day care centre for senior citizens with dementia, run by the Dignity Foundation. And there are just two residencies — A1 Snehanjali in Nallasopara, which can accommodate 13 people, and Dignity Lifestyle, which can accommodate 24. 

Delhi has one day-care centre and one home. "We currently just have four facilities across the country — two in Mumbai, one in Kochi and one in Bangalore. That is far too low," says Mona. "More needs to be done by NGOs and the government, to spread awareness about dementia and provide affordable care infrastructure."

There is little support for the families of those with dementia either.

Alzheimer's: Four signs to watch out for






"We need more awareness camps to help family members understand the disease and learn how to care for their loved ones. The importance of such awareness cannot be overemphasised," says Sailesh Mishra, founder and director of Silver Inning Foundation, an NGO that works with senior citizen and runs the A1 Snehanjali dementia residency home.

"This becomes especially important in a country like ours, where there are not nearly enough residencies and where the cost of those that do exist is also not affordable to all."

At Sea:
According to the Alzheimer’s and Related Disorders Society of India (ARDSI), nearly 3.7 million people in India suffer from dementia — a number that is set to double every 15 years.  "The disease is not curable, but certain lifestyle modifications like engaging in physical activities and cognitive tasks; eating right; socialising and managing stress can delay onset of the disease," says Dr Manjari Tripathi, president of the Delhi chapter of ARDSI.

Poor awareness and the stigma that still attaches to mental disease adds to the problem, says Alka Subramanyam, assistant professor of psychiatry at Mumbai’s government-run Nair hospital, which runs a memory clinic that offers testing and offers counselling to patients and their families. "We definitely need more care infrastructure. The lack of it accounts to a great loss, either direct or indirect, to caregivers."

With little to no infrastructure available, caregivers suffer almost as much as the patients, says Sailesh. "It is hard enough to cope with the fact that a loved one is no longer in control of themselves. It is even harder to then try and care for that person by yourself, while also juggling the demands of children and earning a livelihood."

Even those lucky enough to find full-time care must find a way to pay for it — an average of Rs. 45,000 a month. A residency charges Rs. 30,000 a month, excluding the cost of medicines. In the absence of a residency slot, a trained caregiver costs Rs. 800 to Rs. 1,000 per eight-hour shift.

"A few Facebook pages are trying to spreading awareness and share information and tips on dealing with dementia in loved ones," adds Mishra. "But it remains a lonely struggle."

The Sahadevans from Mumbai are currently in the midst of that lonely struggle. "We considered leaving my mother at a day care centre for seniors with dementia, but haven’t yet been able to find a slot in the city," says Maya. "We are so confused; we don’t know where to go or what to do and it’s not just taking a toll on us, but also on Ma."

(With inputs from Rhythma Kaul)

Courtesy:  http://www.hindustantimes.com/lifestyle/wellness/world-alzheimer-s-day-lack-of-help-care-in-india-for-patients/article1-1266659.aspx


Thursday, September 18, 2014

World Alzheimer Report 2014

World Alzheimer Report 2014 Reveals Persuasive Evidence For Dementia Risk Reduction

Dementia risk for populations can be modified through tobacco control and better prevention, detection and control of hypertension and diabetes.

 




The World Alzheimer Report 2014 ‘Dementia and Risk Reduction: An analysis of protective and modifiable factors’, released today, calls for dementia to be integrated into both global and national public health programmes alongside other major non communicable diseases (NCDs).

Alzheimer’s Disease International (ADI) commissioned a team of researchers, led by Professor Martin Prince from King’s College London, to produce the report. ADI is publishing this report, in conjunction with World Alzheimer's Day™ (21 September) and as a part of World Alzheimer’s Month, an international campaign to raise awareness and challenge stigma.

The report reveals that control of diabetes and high blood pressure as well as measures to encourage smoking cessation and to reduce cardiovascular risk, have the potential to reduce the risk of dementia even in late-life. The report found that diabetes can increase the risk of dementia by 50%. Obesity and lack of physical activity are important risk factors for diabetes and hypertension, and should, therefore, also be targeted.

While cardiovascular health is improving in many high income countries, many low and middle income countries show a recent pattern of increasing exposure to cardiovascular risk factors, with rising rates of diabetes, heart disease and stroke.

Smoking cessation is strongly linked in the report with a reduction in dementia risk. For example, studies of dementia incidence among people aged 65 years and over show that ex-smokers have a similar risk to those who have never smoked, while those who continue to smoke are at much higher risk.

Furthermore, the study revealed that those who have had better educational opportunities have a lower risk of dementia in late-life. Evidence suggests that education has no impact on the brain changes that lead to dementia, but reduces their impact on intellectual functioning.

The evidence in the report suggest that if we enter old age with better developed, healthier brains we are likely to live longer, happier and more independent lives, with a much reduced chance of developing dementia. Brain health promotion is important across the life span, but particularly in mid-life, as changes in the brain can begin decades before symptoms appear.

The study also urges NCD programs to be more inclusive of older people, with the message that it’s never too late to make a change, as the future course of the global dementia epidemic is likely to depend crucially upon the success or failure of efforts to improve global public health, across the population. Combining efforts to tackle the increasing global burden of NCDs will be strategically important, efficient and cost effective. Leading a healthier lifestyle is a positive step towards preventing a range of long-term diseases, including cancer, heart disease, stroke and diabetes.

However, survey data released by Bupa* has shown that many people are unclear about the causes and actions they can take to potentially reduce their risk of dementia. Just over a sixth (17%) of people realised that social interaction with friends and family could impact on the risk. Only a quarter (25%) identified being overweight as a possible factor, and only one in five (23%) said physical activity could affect the risk of developing dementia and losing their memories. The survey also revealed that over two thirds (68%) of people surveyed around the world are concerned about getting dementia in later life.

Professor Martin Prince, from King’s College London’s Institute of Psychiatry, Psychology & Neuroscience and author of the report, commented: “There is already evidence from several studies that the incidence of dementia may be falling in high income countries, linked to improvements in education and cardiovascular health. We need to do all we can to accentuate these trends. With a global cost of over US$ 600 billion, the stakes could hardly be higher.”

Marc Wortmann, Executive Director, Alzheimer’s Disease International said: “From a public health perspective, it is important to note that most of the risk factors for dementia overlap with those for the other major non communicable diseases (NCDs). In high income countries, there is an increased focus on healthier lifestyles, but this is not always the case with lower and middle income countries. By 2050, we estimate that 71% of people living with dementia will live in these regions, so implementing effective public health campaigns may help to reduce the global risk.”

Professor Graham Stokes, Global Director of Dementia Care, Bupa, said: “While age and genetics are part of the disease’s risk factors, not smoking, eating more healthily, getting some exercise, and having a good education, coupled with challenging your brain to ensure it is kept active, can all play a part in minimising your chances of developing dementia. People who already have dementia, or signs of it, can also do these things, which may help to slow the progression of the disease.”


The full report can be found here: www.alz.co.uk/worldreport2014


About Alzheimer’s Disease International
ADI is the international federation of 84 Alzheimer associations around the world, in official relations with the World Health Organization. ADI's vision is an improved quality of life for people with dementia and their families throughout the world. ADI believes that the key to winning the fight against dementia lies in a unique combination of global solutions and local knowledge. As such, it works locally, by empowering Alzheimer associations to promote and offer care and support for people with dementia and their carers, while working globally to focus attention on dementia and campaign for policy change from governments. For more information, visit www.alz.co.uk


About King’s College London
King's College London is one of the top 20 universities in the world (2013/14 QS World University Rankings) and the fourth oldest in England. It is The Sunday Times 'Best University for Graduate Employment 2012/13'. King's has nearly 26,000 students (of whom more than 10,600 are graduate students) from some 140 countries worldwide, and more than 7,000 staff. The College is in the second phase of a £1 billion redevelopment programme which is transforming its estate.
King's has an outstanding reputation for providing world-class teaching and cutting-edge research. In the 2008 Research Assessment Exercise for British universities, 23 departments were ranked in the top quartile of British universities; over half of our academic staff work in departments that are in the top 10 per cent in the UK in their field and can thus be classed as world leading. The College is in the top seven UK universities for research earnings and has an overall annual income of nearly £590 million. www.kcl.ac.uk


About Bupa
Bupa’s purpose is longer, healthier, happier lives.
As a leading international healthcare group, we offer health insurance and medical subscription products, run care homes, retirement villages, hospitals, primary care centres and dental clinics. We also provide workplace health services, home healthcare, health assessments and long-term condition management services.
We have over 22 million customers in 190 countries. With no shareholders, we invest our profits to provide more and better healthcare and fulfil our purpose.
We employ more than 70,000 people, principally in the UK, Australia, Spain, Poland, New Zealand and Chile, as well as Saudi Arabia, Hong Kong, India, Thailand, and the USA.
Bupa is the largest international provider of specialist dementia care, caring for more than 24,000 residents with dementia. For more information, visit www.bupa.com



Saturday, September 21, 2013

Mumbai World Alzheimer's Day / Month 2013

The Theme for World Alzheimer's Month™ 2013:  Dementia , A Journey of Caring  



On the occasion of World Alzheimer’s Day on 21st Sep 2013  ARDSI (Alzheimer's & Related Disorders Society of India) Greater Mumbai chapter in association with Silver Inning Foundation , SVT College , YWCA Andheri , Pushpa MA Foundation , St. Thomas Orthodox Church , Helpage India , Nirmala Niketan College of Social Work & A1 Snehanjali Assisted Living Elder Care Home Invites you for Month long  Programme in September 2013  to create awareness about  Dementia and Alzheimer’s in city of Mumbai and nearby area . All over India ARDSI and its networking organization will hold awareness campaign. The Mumbai event's Online Media Partner is The Metrognome  . 
 
This event is FREE and Open for Family members, Students, Counselors  , Medical and Social Work Professionals , Person suffering with Dementia / Alzheimer’s , Senior Citizens & Interested individuals , with Prior Registration. 
 
12th Sep to 28th Sep : Street Play for sensitization and awareness at various locations and Ganpati mandals in Mumbai , Navi Mumbai and Thane District by Nirmala Niketan Students of Social work in association with Helpage India and Silver Inning Foundation  
 
20th Sep Fri : Interactive Talk and Street Play at Asha Kiran Senior Citizens Facility , YWCA , Near Navrang Cinema , Andheri west , 11am onwards 
 
 21st Sep Sat : Memory Walk and Street Play at Pushpa Ma Foundation , Dada Dadi Park , Veer Savarkar Udyan , L.T.Road , Borivali west , 5pm to 6.30pm 


22nd Sep Sun : Interactive Talk and awareness campaign at St Thomas Orthodox Church, S.V Road, Chincholi, Malad West , 11am to 12.30 . 
 
27th Sep Fri : Interactive Talk and Street  at A1 Snehanjali , Silver Innings Assisted Living Elder Care Home , D'silva Nagar , Nala Village, Nalasopara west , 4pm to 5.30pm . Contact  9323919145 
 
28th Sep Sat : Sensitization Seminar  “Understanding & Respecting Individuals with Alzheimer’s” (Lecture supported with Skits, Videos  &  Poster Exhibition)  by students of Family & Child  Enrichment Center , Department of Human Development , SVT College at Mini Auditorium , SVT College , SNDT University , Juhu , 2pm to 4pm . Contact 9820498738, 9821488790
 
This programme is supported by Eisai . 
 
Contact: ARDSI Greater Mumbai Chapter / Silver Inning Foundation : 9987104233/ 9029000091 (Mon to Sat 10am to 6pm) . 
 
 
 
 
Lets Remember Those Who Cant Remember 
 
 

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