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Tuesday, January 25, 2022

Humans of Dementia - Ajay

 Ajay became a part of A1Snehanjali in 2013 when he was seeking employment while working as a farmer. Ajay is 25 years old and currently works as a caregiver for people with Alzheimer’s disease. He spends his days taking care of them and tending to the needs of the residents. 

Ajay has been a part of the organisation since the project was initiated in August 2013. After he started working at A1Snehanjali, he learnt about Alzheimer’s and he decided he wanted to help the people who have become the victims of such a “nirdaye” (cruel) disease. “Everyone should live a good life,” he said. “Just because they cannot eat or relieve themselves independently, it does not mean we will take away their right to live a good life.”

As a caregiver, Ajay’s job entails waking up the residents, giving them a bath, giving them their medicines, feeding them their breakfast, taking them for a walk, engaging them in group activities, changing their diapers, preparing their lunch and then taking them for a nap. He manages all their grooming activities like helping them brush their teeth, changing their clothes and trimming their nails.

Ajay shared the story of one of the initial days of his job as a caretaker. At that time, there used to be only one resident in the organisation who had a habit of wandering off. Ajay used to stay by his side all the time and follow him around. Spending all his time talking, playing and taking care of that one resident made him so attached to him that Ajay started considering him as his own family member. When asked about the challenges he faces during this job as a caregiver, Ajay laughed and replied, “It’s their anger and their violent hits.” In situations like these, he waits for a few minutes for them to calm down and then tries again.

Despite this job being physically exhausting and mentally draining, the emotional attachment that each resident has with Ajay makes this job worthwhile for him. He “feels good” even after being tired. There have been numerous days throughout the years where Ajay wants to take a leave. When the residents get to know about this news, they get anxious about how they would be spending their day without Ajay, or who would look after them and listen to them talk. And the day Ajay returns to them, they immediately become happy. Ajay says that all this love and little acts of caring they have for him touches his heart and makes him want to work harder for them.

There is one thing that, he feels, many people do not know about Alzheimer’s and dementia disease― the importance of taking care of people who are diagnosed with the condition. Many people give up on them after the diagnosis because they find looking after them to be very tiresome and taxing. Ajay strongly believes that people should not ignore the needs― physical, mental and emotional― of these people. He also thinks that as a caregiver, it is necessary to know how to handle the resident, how to calm them down and understand them and also efficiently manage their sanitation and grooming.

Whenever someone learns that he is working as a caregiver and taking care of people with Alzheimer’s, they greatly appreciate him. He promises to work for and help these people till the day he can and also hopes others would follow his lead and help these people in all the ways they can.

Ajay strongly believes "Those with dementia are still people and they still have stories and they still have character and they're all individuals and they're all unique. And they just need to be interacted with on a human level." - Carey Mulligan.


By Vansh Tibrewal


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